I’m Here But I’m Not is a photovoice exhibition showcasing the lived experience of rheumatoid arthritis (RA). This exhibition is part of a study being conducted at University College Dublin’s Centre for Arthritis Research and the School of Nursing, Midwifery and Health Systems to explore the self-management of rheumatoid arthritis. The launch will take place on 28 September 2019 at The Chocolate Factory Arts Centre in Dublin 1.
Rheumatoid arthritis (RA) is a widespread chronic disease affecting about 45,000 people in Ireland. Without proper treatment, it is associated with disability and lower life expectancy. Organizations such as Arthritis Ireland and the HSE offer self-management education programmes, yet many people choose not to take part in these kinds of programmes. This study helps us to understand why, how these people currently self-manage their condition and what can be done to better support them.
The study uses photography to capture people’s experience of living with RA. Participants received cameras and training from a photographer. Their photographs reflect what they understand as the challenges and solutions to living with the condition.
The project is managed by sociologist Dr Susie Donnelly, working in collaboration with Prof. Gerry Wilson at the UCD Centre for Arthritis Research, and Prof. Thilo Kroll and Dr Hasheem Mannan, UCD School of Nursing, Midwifery and Health Systems. As part of a Patient and Public Involvement initiative, a research advisory group composed of people living with RA collaborate on the project.
Launch: 12 noon, Saturday 28 September at The Chocolate Factory Arts Centre, Dublin 1. The exhibition will be launched by the participants and Dr Susie Donnelly. The display will remain open to the public until 3pm.
Mater Hospital exhibition: To celebrate World Arthritis Day, the photographs will also be on display on the Whitty Wing corridor of the Mater Hospital, Dublin from 14 – 18 October.
Further information: http://www.ucd.ie/car/research/selfmanagement/